No family should have to face a Rare Disease alone.
Tangible care for families living rare.
Care for Rare Foundation supports families navigating rare disease through thoughtfully designed Care Boxes, meaningful connection, and advocacy that helps rare families feel seen.
What We Do
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Care Boxes
Thoughtfully designed Care Boxes provide tangible comfort and support to rare-disease families through diagnosis, hospital stays, and other moments when a little extra care matters most.
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Connect
Rare families shouldn’t have to navigate the journey alone. We create opportunities for meaningful connection and help families find trusted organizations, resources, and support within the rare-disease community.
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Advocacy
We help make rare visible through storytelling, education, community partnerships, and awareness initiatives like Go Rare to Show You Care—turning awareness into meaningful action for rare families.
Looking for Support? We’re here for you.
Rare disease can bring overwhelming, uncertain, and isolating moments—and you don’t have to navigate them alone.
Whether your family is newly diagnosed, facing a hospitalization, or simply going through a difficult season, Care for Rare is here to help you feel seen and supported through tangible care and meaningful connection.
Our Care Boxes offer comfort when it’s needed most, and when you need support beyond what we provide directly, we can help connect you with trusted organizations and resources within the rare-disease community.
Our Story
Care for Rare began with our own family's rare-disease journey.
When our son was diagnosed with a rare condition just days after birth, we entered a world we never expected—one filled with specialists, uncertainty, questions, and an entirely new language to learn. We quickly discovered that while incredible medical and rare-disease organizations existed, there were still moments when we simply needed to feel seen, supported, and reminded that we weren't navigating this alone.
That experience became the heart behind Care for Rare.
Today, we provide thoughtfully designed Care Boxes for families navigating diagnosis, hospitalization, and other difficult seasons; create opportunities for meaningful connection; and advocate for greater awareness of the realities rare families face.
We believe there is room for all of us in the rare-disease community. Care for Rare isn't here to duplicate the important work already being done—we're here to fill a meaningful space alongside it, caring for the family behind the diagnosis and connecting families with trusted support when their needs extend beyond our own.
Partner With Us
Be the Brand That Showed Up
One in ten Americans lives with a rare disease — that's your customers, your employees, your neighbors. Most of them have never seen a business they frequent acknowledge that reality. When your brand stands with Care for Rare, you become something rare yourself: the company that finally said something.
This isn't about charity messaging. It's about using the platform you've already built to shine a light on a community the world has largely overlooked. Every touchpoint becomes a moment of awareness. Every partnership becomes a real act of advocacy.
Go Zebra" Month — February Rare Disease awareness activations in your store and on social
Sponsor a Box — cover the cost of a welcome box for a newly diagnosed family
Co-Branded Rare Items — limited edition products with proceeds and your name alongside ours
30 Million Americans
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7,000+ known rare diseases
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95% have no FDA-approved treatment
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30 Million Americans ~ 7,000+ known rare diseases ~ 95% have no FDA-approved treatment ~
Every family deserves a community behind them.
Join Care for Rare — as a family seeking support, a partner ready to invest, or an advocate who believes rare disease families deserve better. Together, we connect, support, empower, and bring hope.